We’ve Come A Long Way Baby!

Blog-We've Come a long way baby

If you are “a woman of a certain age” you probably remember when the words “breast cancer” were always spoken (if they were spoken) in a whisper.

Did you know that in the early 1950’s, The New York Times refused to print an advertisement from a breast cancer support group? Editors objected to the use of both the word “breast” and the word “cancer”.

We hear that today and think “seriously?!”  We can think that because Komen has been the leading force in de-stigmatizing breast cancer. With conversation comes knowledge and with knowledge comes power and with power comes money and research and results. It all starts with awareness.

I am not sure I realized just how different my journey was from women of other generations until I chatted with my next-door neighbor Hope Deen.

Miss Hope turned 90 last year and she is my idol. (I am Southern and am slightly uncomfortable with calling her simply “Hope” in her presence so Miss Hope she is.)

Hope is so many kinds of fabulous that I cannot count them all. No matter what time of day I see her – announced or unannounced – she is fashionably attired (envision slim pants, crisp white dress shirts, cute flats and cheetah print accessories), with perfect hair / nails / makeup, and mentally sharper than I ever will be. Politics, fashion, celebrities, current events…she knows and has opinions on all of it. Hope FaceTimes on her iPad. Last we visited, she was planning a prank on her family. She was debating whether her Face Time disguise should be Barack Obama (she is a fervent Democrat), Sophia Loren, or Elvis – by wearing a mask she already owns.

I may have voted for the fabulous octogenarian Ms. Loren but I want to BE Hope Deen!

What I love most about Hope is that she will say exactly what she is thinking and half the time you never see it coming. For example, regarding a certain political scandal…”People just need to stop being so naïve!” (It was actually delightfully spicier than that but I can’t blog it here. Love her!)

This openness includes a wonderful willingness to tell her life stories. Hope noticed my pink ribbon car bling and we started chatting about breast cancer one day. She was so dismayed to learn I am a survivor (“but you’re too young!” – bless you Miss Hope). Then she told me her story.

Hope is the mother of three wonderful sons. When the boys were very little, she felt a lump in a breast and consulted her doctor. After referrals to specialists, Hope learned that the mass could indeed could be cancer. The standard of care at that time was to remove the lump under general anesthesia and biopsy it while the patient was still unconscious. If cancerous, a radical mastectomy would be performed and as Hope put it “my lady parts would be removed too.”

Miss Hope’s story of waking up and trying to determine if she was intact just stunned me. I knew breast cancer wasn’t spoken about much before the 1980’s, but I never followed that through…how the lack of awareness, low patient empowerment and limited scientific knowledge impacted the actual patient experience. Wow.

Yes dealing with breast cancer was hard, but I had the luxury of so many options for care (lumpectomy, single mastectomy, double mastectomy…if mastectomy, whether to reconstruct…and if so, how). I made my own decisions supported by doctors and other breast cancer professionals who, to a person, treated me with kindness and as a peer. They respected that I was educated about my disease. My own dad read every word in Dr. Susan Love’s Breast Book. Thank you Susan G Komen for bringing breast cancer into the light!

Hope’s lump was benign…but the memory of that 50-plus-year-ago incident stayed with her. When she told me the story, she recalled every detail as if it were yesterday.

From fifty years ago to now to fifty years in the future…where will this journey take us? It’s up to us. My dream is that breast cancer will be taught in medical and history books right next to scurvy, and future generations of little girls will never grow up to associate their favorite color with a disease.

Let’s do everything we can this year to support the Race for the Cure with renewed purpose and urgency.

The cure IS out there. It’s past time we found it.

Marybeth

Marybeth Cornwell Head Shot Pink Jacket

*Our Guest Blogger, Marybeth Cornwell is the Honorary Survivor Chair for the 17th Annual Komen Ozark Race for the Cure.  Marybeth is the Senior Vice President of Home for Walmart United States and just celebrated her three year cancerversary.

Meet our Honorary Team New Balance Survivor- Tara Ingling!

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Meet our 2015 Honorary Team New Balance Survivor, Tara Ingling!  The Honorary Team New Balance was formed in 1995 to celebrate stories of survival.  For each Race for the Cure, the Affiliate has the opportunity to choose a local survivor to be a part of Honorary Team New Balance.  These members are honored for their personal perseverance against breast cancer and dedication to raising breast cancer awareness.

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Tara’s Story

I was 37 years old, had no family history of breast cancer, and NO risk factors. So why did a voice inside my head continue to tell me I needed to have a mammogram? I asked my OB/GYN for two years to order a baseline mammogram for me, but she felt it was not necessary.  Finally, the third year that voice was no longer a whisper so I decided I would not take no for an answer.

After several mammograms and a biopsy I was diagnosed with high grade DCIS (aggressive ductal  carcinoma in situ).  Luckily, my cancer was caught very early and considered to be stage 0 or 1.  The fact that I have two young children that need me around for a long time made my decision on how I wanted to treat this cancer pretty simple.  I wanted to do what gave me the best survival rate and what would help me to live my life without constantly worrying and looking over my shoulder.  I chose to have a double mastectomy with reconstruction.

With the support of my amazing husband, family, friends, and an incredible team of doctors, I am proud to say that as of March 21, 2015 I am a two year survivor.  There were certainly days that I asked God, “Why me?” But I have tried to turn that around and ask him, “What can I learn from this and how can I help others?” I began volunteering for Susan G. Komen and have met, and hopefully helped, several women newly diagnosed with breast cancer. Along this journey I have met so many amazing and inspiring survivors as well as some women I will forever call my friends.

As a dear friend of mine once said, “We should all be so in love with each day.” If you take anything from my story, please live each day with a purpose and never forget to listen when God is speaking to you.

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“I Hate Cancer More Than I Hate Running!”

-I Hate Cancer More Than I Hate-Marybeth

I just finished with a training run!  I have that smug “uh-huh, I just worked out” feeling.

While I am decidedly one of the least authoritative resources, below are tips that got me to my first 5k (RFTC 2014) and to another one right before Thanksgiving.

Does the below sound like you?…

Not one of those gazelle-type gals with legs for days who thinks “why I wouldn’t dream of not logging at least 25 miles a week!”…

Coming out of winter (ahem) a bit heavier? (I’m lookin’ at you, Tamoxifen. Thanks for those last 10#)….well just remember that a little weight smooths a lot of the cellulite out so you actually look cuter running!

Plain old terrified to try?…

I. So. Get. This.

My fiancé is Mr. Marathon.  066

I kept my training a secret until we went on Spring Break last year and I had to confess what I was doing. (I am not exactly the hop up and exercise on vaca type. He was starting to get suspicious.) Rick was a HUGE training help (those breathing tips!) not to mention his all around wonderful encouragement. We finished the race hand in hand.

…Identify with the above?

Not a problem! You can do it!!!  Here are some tips and tricks that helped me:

A great training app:
-My personal favorite is “5k Runner” from Clear Sky Apps. At a speaking gig recently I heard some fellow survivors raving about the “Zombie, Run! 5k Training” app.

Hey, whatever works.

They are all about 8 week programs.

Whoops, you say you only have 4 weeks?  If you can run (or lope or stagger) for 5-8 minutes straight, you can start up somewhere in week 5 and be just fine.

Killer shoes:
-I’ve always been partial to New Balance (bless their hearts, they make narrows!) What do you know, they make the official Komen running shoes and some apparel too! Y’all, the shoes are awesome!

Great tunes:
-At the risk of embarrassing my almost-47-year old self in front of all the cute, hipster Millennials, here are some of my faves.

Load onto your phone, (the running apps work with players like iTunes) or a tiny player like an iPod Shuffle:

“Shambala” Rockapella
“Joy to the World” Three Dog Night
“Hey Ya” OutKast
“The Long Run” Eagles
“Hot Blooded” Foreigner
“We Will Rock You” Queen
“Don’t Stop” Fleetwood Mac
“ABC” Jackson 5
“Boogie Shoes” KC and the Sunshine Band
“Sweet Home Alabama” Lynyrd Skynyrd
“American Woman” Lenny Kravitz

That’s a sampling…I have 103 songs on the playlist. Oh, make that 104…I have to add Pharrell’s “Happy”!

Good music delivery:
-I love my in-ear Bose headphones from Sam’s Club. They have these silicone thingies that fit the inner curve of your ear (comes with three sizes) and prevent the buds from wiggling around or falling out.

Cute clothes:
-I decided last year, that no matter when or where I run, I will Pink It Up!

My favorites include (of course) Komen tees and anything from Walmart’s Danskin brand athletic line…performance is awesome and pink is always available!

I also love my Komen shoe laces that New Balance gave away at last year’s race.

Training pals:
-Train with friends, even if you do it virtually. My friend Jodi Foutch and I co-trained entirely by text for the Siloam Springs Turkey Trot last year. We traded inspiration, trash talked, and agonized together over our aging hips.

There is also a group of survivors that meets in Fayetteville to train and information about the group named The Buddy Project can be found here.  http://on.fb.me/1DfvCXn

Public commitment:
-Tell your friends, family and coworkers that you are training and get them to sponsor you!

Remember we need to raise one million dollars. Nothing like a little accountability to get you moving! It’s easy to ask 10 friends for $10, right?!

Keep your supporters updated via social media. (Yes, the training apps will do that too!)

The ultimate motivation:
-I read a quote on Pinterest recently that sums it up “Nothing will change until you decide it will.” Last year, I finally decided that I hated cancer more than I hated running. (That is a whole bunch).

Every time I want to quit on a training run, I think about seeing all those survivors at our annual RFTC picture. I think of our angel Georgia Sherrill, my BC mentor who was beloved by so many in our community. I think about my first shower after the double mastectomy when as a grown woman, my mother had to scrub me in the tub like the family dog!

I am grateful that I can run, if slowly and plenty jiggly…and I just keep going.

Survivors, you already kicked cancer. You’ve got this.

Supporters and co-survivors, your dedication inspires us!

See you at the race! (I’ll be the one in pink) 😉

Marybeth

Marybeth Cornwell Head Shot Pink Jacket

*Our Guest Blogger, Marybeth Cornwell is the Honorary Survivor Chair for the 17th Annual Komen Ozark Race for the Cure.  Marybeth is the Senior Vice President of Home for Walmart United States and just celebrated her three year cancerversary.

Culture of Counting

Marybeth

Have you ever noticed that people just don’t know what to say when you share that you are a breast cancer survivor? Or, maybe you are someone who has been in that situation, fumbling for the right words…I know I did before my breast cancer journey. 

When I started speaking publicly to share my experience, I decided it would be helpful educate others on what to say. 

The ideal conversation that I encourage goes something like this… 

“….and I’m a breast cancer survivor.”

“Wow! Thanks for sharing that with me. How many years?”

“Three!”

“Congratulations!”

…at which point most people share that someone important in their life also had a breast cancer journey. 

The next time you get info a similar conversation, I challenge you to take the next step and explain why we observe a culture of counting.

It’s because from the moment of diagnosis, breast cancer patients are locked in a battle with a diabolical disease. We are in it for life – literally. 

Komen has played a major role in improving the relative 5-year survival rate for early-stage cancers to 99% Unfortunately, with that accomplishment comes a misunderstanding by many that “we’ve got this…if you catch it early, it is a one-and-done disease.”

I was diagnosed at 43.  We need to advance the research so we are discussing 45 year survival rates. (My life’s goal is to be a sassy, fashion conscious 90-year old like my next-door neighbor…more about her in another blog.)

Breast cancer still has no cure. Let that motivate us as we Participate, Advocate, & Donate for the 1 in 8.

Off to train with my running app.  See you at the Race!

 Marybeth

#komenozark

Marybeth Cornwell Head Shot Pink Jacket

 

 

 

*Our Guest Blogger, Marybeth Cornwell is the Honorary Survivor Chair for the 17th Annual Komen Ozark Race for the Cure. Marybeth is the Senior Vice President of Home for Walmart United States and just celebrated her three year cancerversary.

#Football101 with Coach Bret Bielema

 

Coach Bielema and survivors

“I remember getting a phone call. I was away at college and first my dad told me and then I got on the phone with my mom and I will never forget that phone call as long as I live.”
—Coach Bret Bielema

Coach Bret Bielema knows first-hand what it is like when a family is affected by breast cancer. As a co-survivor, Coach Bielema wants to give back to help other women and families in the community that face a breast cancer diagnosis.

On July 31st, 2014, the Komen Ozark Affiliate will partner with Coach Bret Bielema and his staff for the inaugural Football 101, an interactive introduction to the fundamentals of college football. This fun, women only event will be held at the Fred W. Smith Football Complex from 5:00-9:00 p.m. and will offer participants the unique opportunity to tour the brand new football facilities, meet the coaching staff and learn of Coach Bielema’s personal passion to support Susan G. Komen.

“Obviously this event is important to me as my own mom battled breast cancer twice so our family knows first-hand how this disease impacts the entire family. Over the years, I have met many survivors and continue to be inspired by their strength and courage. We work hard to make this a unique experience for the participants while at the same time heightening awareness and raising funds for our local Susan G. Komen affiliate.”

The evening will begin with a social hour at 5:00 p.m. during which attendees may mingle with Coach Bielema and the coaching staff. Following the opening reception, women will be split into groups to attend sessions to include basics on the offensive and defensive plays, a question and answer period and tours of the locker room, training facilities and the weight room. Photo opportunities with the groups and survivors will cap off the event.

There are still tickets available! Register now at http://bit.ly/1rE8EUC or visit our website http://www.komenozark.org for more information.

*Women must be 21 or older to attend.

Football 101

Our Woman Crush Wednesday, Nicole Bagley!

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Our “Woman Crush Wednesday” today is Nicole Bagley!  Nicole is a mother of three and a young breast cancer survivor.  Nicole is also a support to other women going through breast cancer. Read her amazing story below to learn just why she is our “Woman Crush Wednesday!”

Nicole’s Story

My mom was diagnosed with Inflammatory Breast Cancer at the age of 36. She fought hard for four years and died at the age of 40. She was the first person in our family to have breast cancer that we knew of.

In March of 2012 I found a suspicious lump while doing a self-exam. I was diagnosed with stage 3 breast cancer at the age of 34. Later we would find out I also carried the BRCA 2 gene. I underwent bi weekly Chemotherapy for four months, a bilateral mastectomy, a hysterectomy, six and half weeks of radiation and many surgeries.

During my battle with breast cancer I was overwhelmed by the love and compassion from my friends, families and even people who I did not even know. My three kids, my husband and the continuous support was my drive to fight cancer and win.

Today I have “no evidence of disease.” I am feeling good and I am living my “new normal” life.

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Jennifer and Nicole

Our Woman Crush Wednesday, Inger Bakaric!

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Our “Woman Crush Wednesday” today is Inger Bakaric!  Inger is a one year breast cancer survivor, serves on the Komen Ozark Race for the Cure Steering Committee and is our New Balance Honorary Team Survivor!

Honorary Team New Balance was formed in 1995 to celebrate stories of survival and to honor athletes who have made a difference in the fight against breast cancer. For each Race for the Cure, the Affiliate has the opportunity to choose a local survivor to be a part of Honorary Team New Balance. These members are honored for their personal perseverance against breast cancer and dedication to raising breast cancer awareness.

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Whatever It Takes-Inger’s Story

In July 2012 I went in for my regularly scheduled mammogram. I was a healthy, active 44 year old with no family history of breast cancer. I pointed out a small bump that I had recently found, within 48 hours they confirmed that it was stage 2 breast cancer. It was very close to the skin surface so I underwent 6 rounds of chemo to shrink it away from the skin, followed by a bilateral mastectomy in January and finally reconstruction in May 2013.

One of my doctors asked me at our first meeting what I was willing to do to get rid of the cancer, after a long scary pause I said whatever it takes. Later I thought about all the things I wanted to do in my life, on the top of my list was complete a sprint triathlon. I decided that as soon as I was able to I would do it, whatever it takes. I had run a 5k but I never thought I would be able to do anything more than that. I stayed as active as I could during chemo and was able to complete a 5k right before my 5th treatment. By the end of February I was able to go to biking class and I started working on getting my strength and endurance up. By April I was training with a beginner triathlon group. It was very hard work, I cried many times upset that my body was not able to work as hard as I wanted it to. In March I was able to do a bike race, in April I was 2nd survivor in Race for the Cure 5k with my best time ever. In May my first open water swim, and in August I had reached my goal and completed 2 sprint triathlons. I realized that I was stronger than I ever thought I could be. I have since run many more 5k races, my first 10k and my first half marathon placing first in the masters division. I am currently training to compete in another half marathon and a duathlon in March.

I decided early on in my treatment that I would not give up, that I would stay positive and I would never quit, and that I would finish what I started whatever it takes. This statement got me through the chemo and the tough days ahead and I still say it to myself anytime I have a hard day. I am so very thankful to my husband Michael who was such a wonderful support for me. He was with me at every doctor appointment; he trained with me and ran by my side during every race cheering me on. I was blessed to have the help of my wonderful friend Jill who among other things sat with me through my first chemo, my daughters Lorelei and Mariana who kept me smiling and helped out whenever I needed anything, my Mom and so many other friends and family that took care of me and kept my spirits up.

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Meet our Featured Survivor, Aracely Falcon!

 

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Aracely is a wife and mother of two and at 37 years old found herself with another title, “Breast Cancer Survivor.”  Aracely was diagnosed with stage 2 breast cancer more than three months ago.

 “I found a suspicious sizeable lump on my right breast, and I knew I had to see the doctor. After several screenings, the doctor told us that the results came out positive. At that time the patient navigator interpreted in detail everything in Spanish and then I felt as if my body was floating in the space. I didn’t listen to any sounds, or noises, I was apart from reality by seconds, then my children, my children came to my mind and I said to myself in a matter of seconds, “I was going to be okay, and that I would come out of it fast’.

 They have been giving me chemotherapy treatments in Highlands in Rogers, AR. Thanks to God I have lots of support from family and friends. But, I also believe that I am very blessed to have found someone that gave me education about breast health and breast cancer in my language and now it can navigate me in the medical system and get connected with several other programs that help women with breast cancer, and these programs are supported by monetary funds from Komen Ozark.

 When this disease comes to you, you not only worry about your own life, you worry about your family, your children and all the treatment expenses that come with all of this.

 Susan G. Komen Ozark is doing so much for us, for us the Hispanic women in Northwest Arkansas. With the organization’s support, many lives have been saved, and I want everyone to know about it.

 Ladies, learn as much as you can about breast health and breast cancer. Do not ignore the symptoms. If you are diagnosed with breast cancer, do not lose the hope, there is help out there.”

 

 

Our Woman Crush Wednesday, Melanie Fitts!

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Melanie Fitts, survivor from Farmington, AR was diagnosed when she was only 24 years old after finding a knot during a self examination. With no family history and testing negative for BRCA Melanie is now working with a doctor in California who does studies on the relationship between cell phones and cancer – her lump was detected in the same spot where she carried her cell during workouts throughout college. Despite many surgeries and hours of radiation, Melanie is positive and works to help other women fight against this terrible disease. Melanie is why we race!

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Meet our Featured Survivor, Deborah Woodard!

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“This is my story”

 

My mother, sister and two cousins are breast cancer survivors along with myself. The Saturday before Mother’s Day I remember examining my breast. The next morning while getting ready for church I noticed tenderness in my left breast.  After church I felt the area and I felt a very small lump. I was in total shock, disbelief, oh my God, surely not, I hope not.  Monday morning at 8 am I called my Gynecologist and made an appointment to be seen that morning. After the breast exam I was scheduled to have a repeat mammogram the next day.  After the test, I saw a surgeon; she then ordered a needle biopsy.  Three days later I was diagnosed with very early stage 1 breast cancer. Three days later I had a lumpectomy and a lymphectomy.  The cancer was only in the lump. On June 26th I started 6 months of chemotherapy and radiation therapy. I see my Oncologist every 6 months for follow-up visits.  Today I’m cancer free and feel “Great”!!  Early detection and prayer is the key to my survival and recovery. I say to all women, “Take care of your body, examine your breasts and get yearly mammograms.”   – Deborah